Monday, January 5, 2009

"Steady as she goes"

I just got the last of Gil's numbers from his Dec 23rd testing and he is, indeed, steady on all counts.  Thought his numbers weren't as low as we would have liked when he had to stop the Velcade, the steadiness is fine to coast on.
We'll see the doc in February and see how it's going.  She expects that by late spring, if his numbers are rising, that it'll be time to try a stem cell transplant.
It's a pretty arduous ordeal and the better shape he's in, the easier it will be on him.  
But,
I've been in NYC for a month with Adam, and the pizza and soda and chips have been winning the day.  He gained 8#s last month and we'll see, now that I'm back, if his superego will get back into the fight.

A brief Adam update:
he has a form on Guillan Barre which has severe axonal damage.  He's just weaning himself off the respirator with hopes of moving to intensive inpatient rehab soon.  His prognosis is uncertain except that it will take a long time to regain what ever muscle function he'll be able to get .
His spirits are for the most part amazingly good.  My son the Buddhist. God, I love him.


1 comment:

raphaelm said...

It’s good to know that Gil’s test shows balanced results and he is well enough to indulge himself in junk food. (That’s usually what happens to a family without the matron’s watchful care). It was so good to spend some time with you last November. We miss you ever!

I am relieved to hear Adam’s progress. He is in my prayers and, young and strong, he will get through the rehab victoriously. As Gil would say: Shit happens… and so do miracles!

Kathleen, you are my inspiration!

May Jehovah be with all of you in good times and in these challenging days.
Isaiah 33:24 And no resident will say: “I am sick.”
Romans 1:12 or, rather, that there may be an interchange of encouragement among YOU, by each one through the other’s faith, both YOURS and mine.

Marcela